Showing posts with label Congental heart defect. Show all posts
Showing posts with label Congental heart defect. Show all posts

Thursday, October 23, 2008

Best News Ever!!

And no I'm not Pregnant...
I don't really think that if I were it would be good news. The blog would be titled "Padded Room Please"

Yesterday was Chloe 2 year Cardiology check up! I called Tuesday in hopes to get in sometime next week and well I was told to come in the next day. To think I thought that was great news being able to take Chloe alone without the big kids.

Now are you ready for the really really really really really really good news? My sweet baby with who has holes in her heart and a temperamental bowel. Doesn't need to see Dr. Stamm again for 2 years!!!!!! Its hard to think that in 2 short years my baby will be 4.

So the Ventricular Septal Defect remains, but its small. I guess most VSD close by the time a child is 2 if its going to close. He remains hopeful that it will close by the time she is 4, but most likely it wont. She will not require it to be patched nor will she need antibiotics before going to the dentist. Chloe is still small as if we didn't know that by looking at her, but they are thinking this is because she was just born early. And not because of her heart and well being small and a girl isn't a bad thing. I'm sure we will all wish we could fit into her size zero pants when shes 15.

It's hard to look at Chloe and not remember all the hard times. Then when you watch her run around the house, coloring on walls and eating markers we are so very lucky she is her today. There was a point in time that we had no idea if we were going to be able to watch her grow up and turn into the sweet, wild and crazy soon to be 2 year old that she is.

I know we are really lucky to have had this outcome. I thank God daily for my sweet baby girl. Even though the first year was really hard and so was most of the second. I wouldn't trade it for anything. She has shown us how to love more and be thankful for what we have. Life if such a special thing and I know how truly special it really is.

Chloe wouldn't be here today if it wasn't for the wonderful Doctors and Nurses at Children's Hospital and the great Nurses at Evergreen Hospital's Breastfeeding Center. We love you Dr. Thomas, Dr. Stamm, I wish I were able to list all the nurses at Children's that helped us while we were there, but I know we don't have that kind of time. Thank you Karen and Sally at Evergreen you helped Chloe so much. If it weren't for you two Chloe wouldn't be here today.

Remember 1 out of every 100 babies born will be born with a Congenital Heart Defect. If you don't know someone now you will. If you would like any information on Congenital Heart Defects or how you can help raise awareness please feel free to email me.



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Until Next Time,
Just MOM

Wednesday, October 1, 2008

Always After The Fact

It's funny how I hear about great things when it's to late. Yesterday I was told about this drug called Synagis it's an RSV Protection medication from of my dearest friends. Her daughter was also born with Congenital Heart Defects like Miss Chloe. She was told about this RSV protection by their Doctor and it sounds like her daughter will be receiving the once a month shot during the cold and flu season.

So I'm thinking SCORE! With the hopes of Chloe not landing in Children's again this year. Even though they are great there is nothing worse than seeing your child that sick. So I made the call to our family Doctor to see whats up. Turns out that last years Hospital stay could have been avoided if I would have asked about Synagis... Kills me how they say something now about it. This year Chloe is too old for it and they have told us to make sure she gets a Flu shot this year.

So I figured I can look at it this way. If Chloe ends up back at Children's with RSV for the third time. I can once again stock up on her favorite pink blankets and diaper rash cream for the year!
Extra added bonus would have to be the HOT DOCTORS! Nothin like some good eye candy when you haven't seen the outside of a hospital for days.

Until Next Time,
Just MOM